Monday, July 6, 2015

Happy 4th and Happy 100 days!!

We had a wonderful weekend celebrating 23 years of marriage (Jim and I tied the knot on July 4th 23 years ago), our nations independence AND my 100 days post transplant!   In specific terms, I am able to get back to a more normal diet (I've been fairly restricted and never thought I would miss salads this much) and can get out a bit more without the Haz Mat getup of mask and gloves (though I will still wear in crowded places or the hospital).  I've also begun tapering off the immune suppressant medications.  My feet and ankles get pretty swollen and 'tingly' - going down on the medications may help alleviate these symptoms.  Also there are complications that are most likely to happen in the first 100 days - getting this far without major complications/setbacks is a huge gift.

Next up for me is getting my central line removed.  This line is used for medications, fluids and blood draws.  The only medication I am on via the line at this point is magnesium.  If I can tolerate the magnesium as a pill (apparently this can be hard on the gut for some) then I will likely get the line removed in the near future.  I've been incredibly fortunate the line has not become infected or been problematic in any way.

Hope you all had an incredible and relaxing 4th of July weekend.

Thanks for checking in!

Love,
Maureen