Family Fun: Beautiful labor day weekend this year and yes I am HOME! I was discharged on Wednesday and enjoyed a nice weekend with Jim and Emma. We had our friends Glen, Kirsten and Jane over for dinner on Saturday. Their dog Cash and Guinness are best buds and entertained us for the evening. Today Jim gave Emma and I a nice diversion of driving up the coast (sadly we had to drive past the hikers and canoes instead of joining in but soon...soon...). Tomorrow Emma and I get the last odds and ends before her first day of school on Tuesday! Joe continues to do well at Bowdoin and may come home to see us later this month. He lives in a house and seems to have a lot of "house meetings". I feel like that is code for something but he assures me it is not.
Medical Update: In my last update I talked about my recent week + hospitalization. That was a doozy. Basically one of the antibiotics I was taking turned rouge. One of the rare side effects of this drug is an increased production of lactic acid. This is what happened to me and I got very sick. It took about 4-5 days for my lactic acid levels to get back to normal. One of the Doctors told me it generally takes 11 or more days for the levels to come down - once again your prayers lifted me out of a very dangerous place and put me back on the road to health. Now that I am home recovering I realize how exhausted I was for the last several weeks before they stopped the antibiotic. I tried to fight it but the reality was I was light headed, had heart palpitations after walking short distances, and low blood pressure resulting in my needing to rest after going a few steps. Scary...fast forward to now and I am feeling pretty strong at home. I use a walker whenever I feel a little tired because my earlier fall scared the sh$% out of me. But for the most part I am getting around on my own and both my resting and post 'exercise' heart rate are very strong. I am thrilled to be back on track and fully appreciate how miserable it is to be, well, miserable. In terms of treatment...I finished another round of chemo and those side effects are kicking in (low blood counts) - no physical side effects yet so we'll wait and see. Still waiting on the sign off for my next round of treatment. I have a feeling when it comes it will be fast and furious. In the meantime, my job is to get stronger and fatter. So off to get some ice cream.
Thanks to everyone who continues to bring meals and help with rides to the clinic. My family could not function without you. God Bless. Also Kate comes back on Sunday which will be awesome. Both fun and super helpful. I cannot have one moment where I feel bad for myself when I am surrounded by all this love.
Thanks for checking in.
Love Maureen
Maureen was admitted to Beth Israel Deaconess in Boston MA 12/16/14 with Acute Myloid Leukemia. She underwent two rounds of high intensity chemo followed by a transplant March 19, 2015. The leukemia was in remission for several months but returned late August '15. Since then Maureen has had several different types of treatment both as an inpatient and outpatient. Currently Maureen is in the hospital (10/17) receiving two different chemo regimens. She hopes to go home soon.
Thanks for keeping us all posted. They say strength comes from doing things you think you can't do. You must be breaking all kinds of barriers because your strength (and attitude) is amazing. Hang in there and hope to see you at some games soon! Sandy B.
ReplyDeleteThanks for keeping us all posted. They say strength comes from doing things you think you can't do. You must be breaking all kinds of barriers because your strength (and attitude) is amazing. Hang in there and hope to see you at some games soon! Sandy B.
ReplyDeleteKeep hangin' in there Kiddo, glad to hear you are back home! I hope your mom is recovering well too. And thank you so very much for the letter you sent a few weeks back. What a nice surprise when you have sooo many things going on. - Gemma
ReplyDeleteIf ice cream is the key to recovery there's a good chance I will never die of natural causes.
ReplyDeleteYou are the strongest person I know!! Prayers for you always! Love you....xoxo
ReplyDeleteYou are the strongest person I know!! Prayers for you always! Love you....xoxo
ReplyDelete